It’s a waiting game at the moment with the little man in the isolette – we’ve been going in each evening excited to see what weight gain he has made and tonight he was 2lb 8oz – there seemed to be some edema on different parts of his body, but we have seen a consistent growth in weight over the past 5-6 days. They are playing with his feeding at the moment. Last week he started vomiting after getting calorie fortifiers so they reduced the breast milk and put him back on TPN (Total Parenteral Nutrition) and a Lipids Infusion – all very tasty food I’m sure. But today they tried him back on the fortifiers so we will see how it goes we are really believing that he will continue to have good weight gain.
Josiah had his second eye exam today and we got a stark letter on his isolette tonight with the latest prognosis of the ROP “Zone 2, Stage 2, progressing” which wasn’t the best news. There is still a good chance it can resolve itself – if it does not Josiah will have to have laser eye surgery. One of the things that can cause or make ROP worse is oxygen – Josiah’s oxygen intake has gone up in the last few days – we pray that both his breathing and his sight is restored to normal.
Speaking of surgery – we saw a doctor from the surgery team today who asked us for permission to write an article about Josiah’s abdominal issues – apparently the perforation of the intestines caused by a Meckels Diverticulum is a very rare combination and they want to include it in some medical journals to add to the body of medical knowledge.
Again thanks to everyone for prayers and support
Jono, Shari and Josiah