This is Shari taking over posting for a few days while Jono is back in Kansas City. Josiah and I took Jono to the airport this morning at 4am so that he could catch a 6am flight back to KC. (That was after I had gotten up to feed Josiah at 11pm and then again at 2:45am!) After we dropped Jono off, Josiah and I had a half hour nap and then headed to the clinic for the 6am feed. Needless to say – I am feeling a little tired so this may be a short post!
Today we had a few ups and downs. First the good news – Josiah gained back almost all of the weight he had lost in the previous week as a result of all of the tube feedings that we did over the weekend. The bad news is that he regressed a bit in his eating skills. Ben had a really tough time getting Josiah to swallow at all. One of the reasons for this is probably a result of the tube having been in his throat irritating it. To prevent anymore setbacks, the plan is to no longer use the tube and work through the weekends – so I guess that means we will be spending Easter in the clinic! (Ben is Jewish – so it doesn’t really matter to him!)
Even though the day was a little rough, Ben still managed to get enough calories into Josiah. He is amazing! We will have to see the results on the scale tomorrow morning.
Shari and Jono, you guys are amazing! Josh and I are praying for you three. Miss you guys!