Tag Archives: tube feeding

Update on Josiah

So much has been happening lately that I really want to blog about three things. The first thing I want to write about is an update about Josiah’s eating situation. We went out to the feeding clinic four times last … Continue reading

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Nearly Two Years Old….

It was an unseasonable 73 degrees in Kansas City on Saturday. So we took Josiah out to Leawood Park – he LOVES slides – this is an action shot as he is sliding down one of the big slides. Later … Continue reading

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18 months old

Cute….

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3 Interesting Weeks

About 4 weeks ago Shari left Kansas City to spend a week in New Jersey before going to the wedding of my brother Justyn in England. It was a little concerning that a few weeks before going on this trip … Continue reading

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Reflecting

I just thought I would take a post to explain some of the lifestyle changes in being able to feed by mouth rather than tube. Even when I now have a bad feed with Josiah – I would take that … Continue reading

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Weight Gain and Feeding

Well – we just came back from the last feed of the day a while ago – I think the 5oz weight gain yesterday kind of tuckered the little guy out – he always falls asleep in his car seat … Continue reading

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Relaxing after a hard day Eating!

Shari is going to post an entry tonight as I’m too tired and busy with other things – but I couldn’t resist posting this picture as he looks so cute – saoking in the tub after a long hard day … Continue reading

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Parent Training Begins

Jono has writer’s block tonight – so I (Shari) am taking over the blog!   We are continuing the process of taking over the feeding from Ben.  Ben fed Josiah all of his solid food today, as he was still … Continue reading

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Another Day at Los Altos

We’ve settled into a routine over these two weeks – up around 5ish and to the clinic for a 6am feed then a mid morning snack and lunch at 1pm. Then dinner at 7pm. This weekend we had decided to … Continue reading

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Need New Pictures

I’m sorry this blog is starting to get boring – we need some pictures to liven it up a bit – I apologise for our lack in this regard – we need to get on that…. tomorrow… in the meantime … Continue reading

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