Back Home in Kansas City

I’m exhausted…. sitting here on our couch in KC. It’s been a long intensive 3 weeks – but we are finally back home. I’m sorry I didn’t get round to a blog yesterday – it was kind of rushed and by the time I rolled into bed I really wanted sleep more than to blog…

So how has the feeding been going with Josiah – better and better – it seems now that each feed we are getting in to him over 500 cals – which is amazing – yesterday was a new record of 1850 cals in the day. Amazing as it’s all by mouth. We said goodbye to Ben and Jessica (Ben’s Assistant) finally last night – stocked up on all feeding supplies and Shari is now well equipped in the feeding protocol that we have to be very rigid about keeping for the next few months – after that we can look at different flavours and textures – which is apparently a very easy step up once Josiah has truly learnt how to swallow each bite properly. In the meantime we will stick with the high calorie food and get a little step up on the growth charts.

Today was going to be an interesting challenge – feeding Josiah while traveling all day – a challenge which we passed well – even if Josiah was tired and whiney the whole flight back from San Francisco – (Sorry to all passengers on the Mid West Flight). It really helps that we can get over 500 cals per meal in to him – then add in a few drink snacks and he was going great – Even though we only managed 2 main feeds we still managed to get around 1600 cals into him – and he drank quite a bit of this on the plane. One thing I love about feeding him by mouth is the fact that he does not spit up – we can feed him some milk by cup on the plane and I am confident he is not going to spit up – amazing.

So what’s my assessment of the three weeks

Week 1 – Josiah lost a bunch of weight (8oz) and feeding was hard – he cried alot and spit up alot during the meal – but the resistance gradually tapered off – the first weekend when we had to put in the tube again was not so pleasant – much spit up in many places all over the bay area. However the one saving grace is that he regained some of the lost ounces.

Week 2 – Still lost weight- but Tuesday/Wednesday a corner was turned – he ate a whole lot better – and from then on he has been going great – putting on weight. Eating more and more solids in one setting.

Week 3 – A week of parent training – It is not easy with NG babies – he still finds swallowing hard – and feeds are still 30-40 mins – but they are getting better. The weight gain which started last week took off – now Josiah is gaining an average of 3 oz per day – which is pretty amazing.

The primary purpose we went was to remove Josiah’s dependency on the NG tube – and we have achieved that very well

Now I must go to bed….

About Jono Hall

Disciple of Jesus, Husband and Father, Intercessory Missionary, Senior Leader at International House of Prayer and Teacher at IHOPU
This entry was posted in Personal Updates, Preemie Journey. Bookmark the permalink.

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